Listen Live
Donate
 on air
Schedule

KCRW

Read & Explore

  • News
  • Entertainment
  • Food
  • Culture
  • Events

Listen

  • Live Radio
  • Music
  • Podcasts
  • Full Schedule

Information

  • About
  • Careers
  • Help / FAQ
  • Newsletters
  • Contact

Support

  • Become a Member
  • Become a VIP
  • Ways to Give
  • Shop
  • Member Perks

Become a Member

Donate to KCRW to support this cultural hub for music discovery, in-depth journalism, community storytelling, and free events. You'll become a KCRW Member and get a year of exclusive benefits.

DonateGive Monthly

Copyright 2025 KCRW. All rights reserved.

Report a Bug|Privacy Policy|Terms of Service|
Cookie Policy
|FCC Public Files

Back to To the Point

To the Point

An old drug gets a ridiculously high price….again

Are incentives for so-called "orphan drugs" being misused to jack up the price of one medication by 4000 percent?

  • rss
  • Share
By Warren Olney • Feb 23, 2017 • 1 min read

Are incentives for so-called "orphan drugs" being misused to jack up the price of one medication by 4000 percent?

Photo by Chris Potter

A rare form of muscular dystrophy has long been treated in the US by a steroid imported from overseas at a price of $1200 a year. Now the FDA has approved its manufacture and distribution in this country by the drug company Marathon. The new price is $89,000 a year — reduced to $54,000 after rebates and discounts. We get perspective from Carolyn Johnson, who covers the business of medicine for the Washington Post, and Dr. Aaron Kesselheim, a professor of medicine at Harvard, where he's also Director of the program on Regulation, Therapeutics and Law.

  • https://images.ctfassets.net/2658fe8gbo8o/AvYox6VuEgcxpd20Xo9d3/769bca4fbf97bf022190f4813812c1e2/new-default.jpg?h=250

    Warren Olney

    former KCRW broadcaster

  • KCRW placeholder

    Andrea Brody

    Senior Producer, KCRW's Life Examined and To the Point podcast

  • KCRW placeholder

    Christine Detz

    Producer, 'To the Point'

  • https://images.ctfassets.net/2658fe8gbo8o/AvYox6VuEgcxpd20Xo9d3/769bca4fbf97bf022190f4813812c1e2/new-default.jpg?h=250

    Jenny Hamel

    KCRW

  • KCRW placeholder

    Carolyn Y. Johnson

    science reporter, Washington Post

  • KCRW placeholder

    Aaron Kesselheim

    Harvard Medical School

    NewsNationalPolitics
Back to To the Point